Colorado

We’ve added more to Dax’s list of travels! Even though we’ve taken every opportunity to be outside on our patio, it was time to get off of Knox Drive. Colorado is a peaceful place for us, so it was first on our list. Dax and Ozzie explored Garden of the Gods. Ozzie could barely walk after bouncing around on the trails, so while he napped and recovered, we took Dax to his first baseball game! It’s been so long since I’ve been to a sporting event, Dax and I both flinched when fans cheered — we’re used to level 22 on the TV. Dax cooed a little while at the game and Tyson had a bucket list moment of being at a baseball game with his son. All of the employees at Coors Field were so helpful and accommodating, it was the perfect place for Dax’s first game

We were even brave enough to take Dax [and Ozzie] to a couple of restaurants. Getting Dax out more, I’ve noticed people looking at our unique family and even had the experience of a stranger sitting down at our table (I won’t say anymore). No matter how many looks we get, or how many strangers approach us with questions or dumb comments, we are SO PROUD to be Dax’s parents and that will never detour us from going places. I think the takeaway here is, every family has a story. You never know what the people at the table next to you have been through.

I wouldn’t wish the trauma that we’ve experienced on any family, but I think the world would be a lot kinder if everyone had a child with special needs.

I’ve taken a step back from frequent updates on the blog, the privacy has been much needed. Dax has had a really difficult time the last few weeks with frequent choking/gasping for air/throwing up. My “mom instincts” tell me the reasons why he does this, but with Dax’s disorder being so rare, we may never know the true reasons why. We’ve gotten wake up calls at 2 or 3 am every morning and the choking fits go on for an hour or 2, some days – even longer. Each day is unpredictable, but it’s a constant reminder to stay present in each day.

Thanks to our amazing neurologist, Dax has more Botox than an LA housewife! We’re hoping and praying that with Dax having Botox in his saliva glands, it’ll slow down the production and he can have some relief. Dax has been really tired lately, we’re hoping our boy gets his spunk back soon.

Please refrain from contacting us with brainstorming or additional questions (things are complicated). Prayers are always appreciated.