1,095 days with Dax.

First I want to address this: How is my baby three years old already? 

Dax celebrated his big day at Union Station. We had a day filled with sunshine (and strong winds, so we opted for something indoor). Dax’s playlist played in the car all afternoon. We watched an Under the Sea movie at the Planetarium and saw all of the Super Bowl decor. Dax liked the movement of the colors in the movie, but I think riding in the car was the most fun for him. Dax had many friends and family reach out to wish him a happy birthday – Dax had a yard sign, a basement filled with balloons, an announcement in the Kansas City Star, and a sweet tribute from Magnetic Me.

And at 4:55 PM, I was able to hold my sweet Dax in my arms. I can’t describe the peace and calmness I feel when I have my arms wrapped around him. It’s hard to describe how time feels, there’s always a mixture of emotions approaching his birthday; there’s excitement to celebrate a miraculous milestone, but at the same time, I want time to slow down, no amount of time will ever be enough. Dax goes through so much each day and his strength and fight to be with us earth side is incredible. He is a true miracle. I am so grateful that his life has surpassed over 1,000 days and his life has been filled with many memories, travel, love, and happiness. I feared that his life would be spent in and out of the hospital – and so far, it has been just the opposite. He is so loved.

I know every family has different traditions, children are raised in different cultures and religions, accessibility varies… but I think as parents we all have similar wishes for our kids:  we want our children to be kind, help others, and not change/conform to what society wants them to be. We always say that Dax is our wildflower, he’s going to grow into who he is supposed to be, without interference. I think this is a simple reminder to just be you and the right people will be in your life.  

And Dax is kind, loving, he is helping others, and he’s making an impact. We connected with team members at Magnetic Me, and they were so touched by Dax’s story and our book, that they made a donation in his name to the NICU Dax spent time in.

We wish everyone a happy spring! We’re looking forward to warmer weather.