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The Story of Dax Wilder

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Author Archives: Tyson and Danielle

Arches National Park

We made memories at this stop that are engraved in our minds. Tyson rented a Jeep so we could be a little more mobile to check out some trails. We tried to do a little hiking, but the heat got to all of us! So we decided to take the Jeep on an off-road trailContinue reading “Arches National Park”

Posted byTyson and DanielleMay 20, 2021May 21, 2021Posted inUncategorizedTags:Arches National Park, Balanced Rock, Canyonlands National Park, Delicate Arch, Moab, Shafer Trail

Zion

The next stop on our trip was Zion National Park. On our first night, we stayed at Quail Creek RV, about 45 mins from Zion – we stayed there long enough to have an outdoor movie night and to do laundry (there’s ALWAYS laundry). Tyson was fortunate enough to find last minute availability at ZionContinue reading “Zion”

Posted byTyson and DanielleMay 20, 2021May 21, 2021Posted inUncategorizedTags:Pa’rus Trail, Zion National Park

The Grand Canyon

The first stop on our Dax-Mobile adventure was the Grand Canyon. We were fortunate enough to stay at a campground just near the South Rim. We got the stroller packed up and walked about a mile and a half to Mather Point. Once we got to the lookout point, Dax made his appearance be known.Continue reading “The Grand Canyon”

Posted byTyson and DanielleMay 20, 2021May 21, 2021Posted inUncategorizedTags:Grand Canyon, Mather Point

The Dax-Mobile

Well. We bought an RV! I never thought in a million years I’d be excited about road-tripping in an RV and staying at campgrounds, but I can’t wait! Tyson enjoyed traveling this way as a kid and always tried to convince me to get an RV, and here we are…. Tyson finally gets to haveContinue reading “The Dax-Mobile”

Posted byTyson and DanielleMay 7, 2021May 7, 2021Posted inUncategorizedLeave a comment on The Dax-Mobile

PCH Type 8.

We were fortunate enough to know within days of Dax being born, that he had Pontocerebellar Hypoplasia (PCH), but it all depended on the genetic results to diagnose his type. There have been approximately 115 cases world-wide with PCH and there are a handful of genes that are “commonly” seen as a reason for PCH.Continue reading “PCH Type 8.”

Posted byTyson and DanielleApril 14, 2021April 15, 2021Posted inUncategorizedTags:CHMP1A, PCH, Pontocerebellar Hypoplasia, Type 8

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