December was overall an upbeat month for us! Dax had many days filled with happiness: babbling, bouncing on Dad’s lap, kisses from Ozzie, peaceful naps, and evenings on FaceTime talking to his grandparents. There were even a couple of moments I was just on the phone with some of my best friends and they wereContinue reading “The Last Month of 2021”
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November
It’s been a minute! I thought I’d take some time to write about Dax. I hope everyone that reads this is having a wonderful holiday season so far. We can’t believe that we have a 9 month old. October was a difficult month for our family. Dax was on some medication that took the lifeContinue reading “November”
A visit to Children’s Mercy.
As mentioned before, Dax doesn’t have any coordination or control over his limbs, he has frequent little spastic motions; but he started doing a new movement a few days ago. The movements quickly transitioned to clusters – it was something we’d never seen before. We spoke to our neurologist as soon as we could andContinue reading “A visit to Children’s Mercy.”
Dax made it to Indiana.
After months of staying home, Dax was blessed with a “stable” window. I honestly never thought we’d be able to travel with Dax anymore. Both of my grandmas understood our situation and unfortunately they had to accept that they probably wouldn’t meet their first and only great grandson. But, we finally felt confident to getContinue reading “Dax made it to Indiana.”
August 8.
Today was a big day for our little family. Dax turned 6 months old! It’s such milestone for us (especially for Dax), considering we met with hospice on our last day in NICU. Our lives are much like rollercoaster; Dax is up and down, and I’m up and down. Tyson exceeds at every level atContinue reading “August 8.”
The Story of Dax Wilder 