As mentioned before, Dax doesn’t have any coordination or control over his limbs, he has frequent little spastic motions; but he started doing a new movement a few days ago. The movements quickly transitioned to clusters – it was something we’d never seen before. We spoke to our neurologist as soon as we could andContinue reading “A visit to Children’s Mercy.”
Tag Archives: CHMP1A
August 8.
Today was a big day for our little family. Dax turned 6 months old! It’s such milestone for us (especially for Dax), considering we met with hospice on our last day in NICU. Our lives are much like rollercoaster; Dax is up and down, and I’m up and down. Tyson exceeds at every level atContinue reading “August 8.”
Christmas in July.
The gears shifted when Dax was born. Now, the mindset is, live for today, be present in the day, and don’t worry about tomorrow (easier said than done some days) but that’s what we strive to do. Making memories and showing him as much as possible is extremely important to us. Dax has seen moreContinue reading “Christmas in July.”
4 months old.
We usually don’t count the months, but wow. Dax is 4 months old already. He loves to spend his days outside and in the evenings he enjoys watching reality TV with his Mom… Just kidding. He usually spends his evenings sitting in his Dad’s arms chatting. Ozzie also joins in on the evening conversations andContinue reading “4 months old.”
We skipped Mt. Rushmore
Dax hasn’t tolerated feedings very well on our trip and gave his mom and dad a scare, so we canceled our stay in South Dakota and drove straight to Kansas City. Tyson drove 23 hours in a 27 hour time frame (we stayed in close contact with our doctor on our way back home). WeContinue reading “We skipped Mt. Rushmore”
The Story of Dax Wilder 