Dax hasn’t tolerated feedings very well on our trip and gave his mom and dad a scare, so we canceled our stay in South Dakota and drove straight to Kansas City. Tyson drove 23 hours in a 27 hour time frame (we stayed in close contact with our doctor on our way back home). WeContinue reading “We skipped Mt. Rushmore”
Tag Archives: PCH
PCH Type 8.
We were fortunate enough to know within days of Dax being born, that he had Pontocerebellar Hypoplasia (PCH), but it all depended on the genetic results to diagnose his type. There have been approximately 115 cases world-wide with PCH and there are a handful of genes that are “commonly” seen as a reason for PCH.Continue reading “PCH Type 8.”
The Story of Dax Wilder 