I want to start out this blog post as I traditionally do, and give an update. Dax had a wonderful time on his Make-A-Wish trip. With Dax’s diagnosis he qualified for a rush wish, which means that his wish is fulfilled within 90 days of being granted. Our wish for Dax was to go toContinue reading “1,364 miraculous days. And love that will last an eternity. “
Tag Archives: Pontocerebellar Hypoplasia
1,095 days with Dax.
First I want to address this: How is my baby three years old already? Dax celebrated his big day at Union Station. We had a day filled with sunshine (and strong winds, so we opted for something indoor). Dax’s playlist played in the car all afternoon. We watched an Under the Sea movie at theContinue reading “1,095 days with Dax.”
Happy New Year!
Once again, another season has passed since the last post. 2023 was quite the year. We are forever grateful that Dax has been riding a continuous wave and we’ve had minimal changes in his plan to keep him comfortable and happy. He has continued to grow and will soon be three years old. We’ve addedContinue reading “Happy New Year!”
We can FINALLY share the big news…
I wrote a book! I’m officially a published author. I’ve kept the idea of writing a children’s book very close to my heart; I signed the contract with a self-publishing company based in Canada in July 2021, so to say that I’m excited to make this announcement is an understatement! Since having Dax, IContinue reading “We can FINALLY share the big news…”
Dax turns 2!
Dax is officially a 2 year old! And we celebrated big! As you all know, Dax enjoys being outside and he absolutely loves warm weather. So it only made sense to travel to the Sunshine State for Dax’s extra special day. Once we got settled in our VRBO, we took Dax to the beach toContinue reading “Dax turns 2!”
The Story of Dax Wilder 