I want to start out this blog post as I traditionally do, and give an update. Dax had a wonderful time on his Make-A-Wish trip. With Dax’s diagnosis he qualified for a rush wish, which means that his wish is fulfilled within 90 days of being granted. Our wish for Dax was to go toContinue reading “1,364 miraculous days. And love that will last an eternity. “
Tag Archives: Pontocerebellar Hypoplasia Type 8
Happy New Year!
Once again, another season has passed since the last post. 2023 was quite the year. We are forever grateful that Dax has been riding a continuous wave and we’ve had minimal changes in his plan to keep him comfortable and happy. He has continued to grow and will soon be three years old. We’ve addedContinue reading “Happy New Year!”
We can FINALLY share the big news…
I wrote a book! I’m officially a published author. I’ve kept the idea of writing a children’s book very close to my heart; I signed the contract with a self-publishing company based in Canada in July 2021, so to say that I’m excited to make this announcement is an understatement! Since having Dax, IContinue reading “We can FINALLY share the big news…”
Dax turns 2!
Dax is officially a 2 year old! And we celebrated big! As you all know, Dax enjoys being outside and he absolutely loves warm weather. So it only made sense to travel to the Sunshine State for Dax’s extra special day. Once we got settled in our VRBO, we took Dax to the beach toContinue reading “Dax turns 2!”
November
Our little guy is 21 months old! Dax is looking more and more like a big boy; he has changed so much this year. He now has 8 teeth and is seeing things from a standing position! We’ve been working closely with a great equipment company and Dax now has his own standing frame. BenefitsContinue reading “November”
The Story of Dax Wilder 