As mentioned before, Dax doesn’t have any coordination or control over his limbs, he has frequent little spastic motions; but he started doing a new movement a few days ago. The movements quickly transitioned to clusters – it was something we’d never seen before. We spoke to our neurologist as soon as we could andContinue reading “A visit to Children’s Mercy.”
Tag Archives: Pontocerebellar Hypoplasia
Dax made it to Indiana.
After months of staying home, Dax was blessed with a “stable” window. I honestly never thought we’d be able to travel with Dax anymore. Both of my grandmas understood our situation and unfortunately they had to accept that they probably wouldn’t meet their first and only great grandson. But, we finally felt confident to getContinue reading “Dax made it to Indiana.”
August 8.
Today was a big day for our little family. Dax turned 6 months old! It’s such milestone for us (especially for Dax), considering we met with hospice on our last day in NICU. Our lives are much like rollercoaster; Dax is up and down, and I’m up and down. Tyson exceeds at every level atContinue reading “August 8.”
Christmas in July.
The gears shifted when Dax was born. Now, the mindset is, live for today, be present in the day, and don’t worry about tomorrow (easier said than done some days) but that’s what we strive to do. Making memories and showing him as much as possible is extremely important to us. Dax has seen moreContinue reading “Christmas in July.”
4 months old.
We usually don’t count the months, but wow. Dax is 4 months old already. He loves to spend his days outside and in the evenings he enjoys watching reality TV with his Mom… Just kidding. He usually spends his evenings sitting in his Dad’s arms chatting. Ozzie also joins in on the evening conversations andContinue reading “4 months old.”
The Story of Dax Wilder 